Caregiving
About caregiving...
Did you know that one in five people in Quebec is a caregiver, or approximately 1,500,000 people? However, it is important to know that this number is probably higher because many people do not recognize themselves as caregivers.
Am I a caregiver (PPA)?
- I care for my young child or teen with special needs or an illness.
- I provide occasional or daily hygiene and food care to my spouse or parent living with a physical disability.
- I provide support to my mother living with my father – who has suffered a great loss of autonomy and memory – in the coordination of care and banking.
- I am there to listen to, encourage and support the activities of my older brother who is experiencing difficulties related to his mental health condition.
- I offer help to my neighbour, who is temporarily disabled, for transportation, shopping and home maintenance.
- I am providing end-of-life support to my friend.
If you recognize yourself in any of these statements, you are likely a caregiver. Caregivers can be any age and come from any background.
The support you provide to one or more people in your life is essential and can take many forms. The goal of support is to promote the care receiver’s recovery and the preservation and improvement of their quality of life at home or in other living environments.
What are the impacts of caregiving in the life of a PPA?
The role can have several beneficial aspects, such as strengthening relationships with the care receiver, being valued and creating a sense of usefulness.
However, it can also have financial implications for the caregiver, limiting their ability to care for their own physical and mental health or to assume other social and family responsibilities. Many other consequences can be experienced in this role, including difficult emotions (e.g., worry, irritability, anger), anxiety, stress, feeling of being overwhelmed, fatigue, abuse, relationship transformation, isolation, tardiness and absenteeism at work or school, etc.
Recognize to provide better support
Recognizing yourself and being recognized as a caregiver will make you more vigilant regarding the impacts that this role has on your life, your daily activities and your health. This will make you more likely to seek support and help resources to meet your needs and reduce the possible impact on your physical and psychological health. For those around them, recognizing a caregiver makes it possible to better support them in their role.
What services are available for caregivers?
Depending on your situation, the following services may be available to you:
- Respite;
- Individual and/or group psychosocial support;
- Information and training;
- Support in activities of domestic and daily living.
These services can be provided by various organizations, including community organizations, volunteer groups, social economy enterprises or CISSS de l’Outaouais facilities such as the CLSC.
How to access services?
Various programs of the CISSS de l’Outaouais may be able to offer services if the person you are helping is eligible. If you need someone to talk to, access to information or referrals, contact:
INFO-Social (811 option 2) | Talk to a psychosocial worker – 24/7
If the person you are helping is already receiving services from the CISSS de l’Outaouais, contact their caseworker for available services.
Other resources
Listening and support are also available over the telephone from various organizations:
- L'Appui: 1-855-852-7784 | Caregiver Support Helpline Seven days a week, 8:00 a.m. to 8:00 p.m., info-aidant@lappui.org
- Helpline for the loved ones of someone living with a mental health disorder | 1-855-CRAQUER
- 1-800-349-9915 | Ligne pairs aidants famille AQPAMM and SQS – For people involved with individuals living with a mental health disorder | 1-800-349-9915
You can also consult the Resource Directory compiled by L’Appui for services near you.
Several videos produced by the Saint Elizabeth Foundation on Care Channel could also be helpful. They are available in several languages.
Did you know
The Ministère de la santé et des services sociaux released a five-year Government Action Plan (PAG) in 2021. It includes 61 measures to recognize and better support caregivers (PPA).
The PAG is linked to the Act to recognize and support caregivers adopted in 2020 and to a national policy tabled in the spring of 2021.
Liens utiles pour les proches aidants
- L'Appui – Understanding Your Loved One’s Situation: A page dedicated to understanding the health condition of your loved one, including various resources on diseases. Also features key information, training, and references for caregivers.
- Observatoire québecois de la proche aidance: Provides reliable and evidence-based information on caregiving through research, monitoring, and knowledge sharing.
- Proche aidance Québec – Well-treatment of Caregivers: Toolkits to help "see the invisible," encouraging respectful and supportive behaviours toward caregivers and preventing abuse or burnout.
- Monastère des Augustines: Respite and wellness services tailored for caregivers.
- Protégez-vous Magazine – Caregiver Edition Guide: A practical guide designed to inform and empower caregivers throughout their caregiving journey.
- L’Appui:
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- Learning to Become a Caregiver: Free training and support program for those supporting someone recently diagnosed with Alzheimer’s or a related disease.
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- MeSSAGES / Step-by-Step Stress Management: Free online programs for all caregiving contexts, focusing on learning and applying stress management strategies.
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- You and Me as Life Goes On: Free online training for caregivers supporting a senior with Alzheimer’s or another cognitive disorder who has been living in a care facility for more than two months.
- Philippe Voyer Platform – Caregiver Space: A dedicated virtual space offering reference materials, educational videos, and recorded conferences. Access code: entraide.
- Fondation Émergence – Chosen Family Program: Awareness tools and inclusive training adapted to the diverse realities of caregiving environments.
- Agir pour bien vieillir: Resources to help older adults and their caregivers maintain control over their health and quality of life.
- Au fil du temps: An initiative by the Ordre des psychologues du Québec to improve understanding of brain aging and promote compassionate care for seniors.
- Parent aidant – Cap 18 ans: A platform that supports parents of children with special needs during the transition to adulthood, offering concrete tools, reliable information, and guidance.
- L’Accompagnateur: A digital platform for caregivers of people with disabilities, offering tailored resources by age group and condition, plus access to free virtual conferences.
- Observatoire québecois de la proche aidance – Trajectory of Parent Caregivers of Autistic Children: A visual and narrative tool identifying key moments and challenges in the caregiving journey, to better tailor support.
- Curateur public – Legal Protection and Assistance Measures: Overview of representation mechanisms, including the assistance measure, to support individuals experiencing difficulty with decision-making or managing affairs.
- Éducaloi – Practical Legal Tools and Caregivers: Practcial Legal Tools: Easy-to-understand legal resources designed to help caregivers navigate laws and regulations related to their role.
- Proche aidance Québec – Work-Life Balance and Benefits: Information on caregiver leave policies and available benefits, including video explainers.
- CNESST – Caregiver Certification: An official form that confirms caregiver status, to support employment-related absence requests. Must be completed by a health and social services professional.
- Cap Santé mentale – Teen Zone: Resources and advice to help young caregivers better manage their role while supporting someone with a mental health issue.
- KARE Magazine: Bilingual magazine sharing stories, strategies, and self-care tips for young caregivers balancing school and support roles.
- L’Appui – Being a Young Caregiver: Dedicated page offering testimonials, helpful tools, and FAQ for youth in caregiving roles.
- Observatoire québecois de la proche aidance – Trajectory of Young Caregivers: A visual and analytic overview of the unique challenges faced by young caregivers, pinpointing key support opportunities.
Write to us
If you have any questions or thoughts about caregiving, please contact us at 07.proche_aidance_cissso@ssss.gouv.qc.ca
Would you like to bring a situation to our attention?
All users of Quebec’s health care system have the right to safe and quality care and services. For those who are not satisfied with the care and services received or feel that their rights were not respected, there are recourses in place.
Go to the Filing a Complaint and User and Resident Committees pages to get information regarding your rights and to guide you on what steps you can take if you are dissatisfied.